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本平台医疗信息及相关内容(含个案及研究结论)仅供参考,不构成诊疗、医学建议或疗效保证,相关结论可能存在争议。补剂/药品仅限成分分析(不涉品牌),用户自担使用相关内容、产品及外部链接风险;干预或用药前请咨询执业医师。
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对我们孩子有效的方法 - 管理清单! 新文件
作者:Rebecca Ferguson · 2018年3月18日,星期日
本页面收集了群组版主关于“哪些治疗对我们的孩子有帮助”的清单(按时间顺序排列)。其目的是表明:每个孩子有效的治疗方法存在差异,但也存在可能帮助家长聚焦的模式和相似性。
每位家长应与医生合作,为孩子定制治疗方案,实验室检测通常可帮助指导选择。请不要将此视为我们建议您为孩子尝试的治疗方案,而应将其作为您需要时的想法起点!
在本页面底部,您还会看到一个单独的部分,列出了我们尝试过但对孩子无效的方法。
注意:部分列出的补充剂和治疗方法附有更多信息的链接 - 可能是个人博客文章或其他信息来源。您也可以在我们的群组中搜索关于所列任何项目的许多过往帖子。
Rebecca Ferguson,女儿13岁,自闭症谱系障碍(ASD)、PANS(合并莱姆病)
- 行为平衡DMG - 改善耐受性、语言能力、过渡适应能力、参与度
- 消化酶 - 细微变化提示需要改变饮食
- 饮食调整 - 先无麸质(GF),后无酪蛋白(CF)和无大豆(SF) - 优秀的TACA页面链接在此
- 维生素和矿物质补充剂
- 自然治疗酵母菌 - 更平静、更专注、更少自我刺激行为
- 甲钴胺(Mb-12)注射 - 语言爆发
- 鱼肝油 - 提高耐受性和改善情绪
- 特定碳水化合物饮食(SCD) - 更专注,远比无麸质/无酪蛋白/无大豆饮食(GFCFSF)效果好
- 氟康唑(Diflucan) - 语言爆发、更专注、减少脑雾
- 甲硝唑(Flagyl) - 减少强迫症(OCD)症状
- 褪黑素 - 显著改善睡眠
- 低剂量纳曲酮(Low dose Naltrexone) - 最初有帮助但停止使用 - 导致失眠
- 微高压氧治疗(mHBOT) - 减轻所有自闭症症状,更平静、更快乐、耐受性提高、语言改善、减少发脾气/焦虑 - 酵母菌增加
- 低草酸盐饮食(除SCD外) - 消除尿中草酸盐和炎症
- Andy Cutler螯合疗法 - 85轮治疗 - 耐受性提高、意识改善、注意力集中、社交参与度增加、语言能力显著提升
- 肾上腺皮质提取物 - 停止情绪崩溃
- 顺势疗法 - 效果未持续,但再次尝试时看到良好效果!
- 骆驼奶 - 更多参与度、注意力和语言能力
- 治疗寄生虫 - 减少磨牙、踱步、重复语言、言语刺激和模糊感
- 左旋肌肽(L-carnosine)& 丝氨酸磷酸(Seriphos) - 改善平静度和灵活性
- PANS草药治疗 - 金印草等 - 成功替代抗生素
- 益智药:Get Smart - 显著认知提升
- 甲状腺治疗 - 更专注,减少对肾上腺支持的需求
- 停用益生菌 - 停止强迫症/抽动
- Neuroprotek - 减少强迫症,更平静快乐
- 普萘洛尔(Propranolol) - 帮助缓解焦虑,但停用后状态更专注
- 加兰他敏(Galantamine) - 减少强迫症、更专注、消除脑雾
- 石杉碱甲(Huperzine A) - 减少强迫症、更专注
- 乳清酸锂(Lithium Orotate) - 轻微改善性情
- 吡咯喹啉醌(PQQ) - 优秀的线粒体支持
- BH4 & 螯合剂 - 治疗氨中毒 - 减少类似酵母菌感染的异常发笑
- 用抗生素和草药治疗莱姆病 - 见[此帖子]底部
- 多种补充剂排毒支持(列表见链接) - 莱姆病治疗必需
- 抗雄激素药物 - 更平静、消除短暂暴怒发作、更多语言、更投入
- CBD油 - 显著降低焦虑和炎症,萜烯类化合物对睡眠也有显著帮助
- 自然治疗情绪、焦虑和轻度抑郁
Melissa Vega,儿子Aidan,12岁,自闭症谱系障碍(ASD)、PANDAS(合并莱姆病)
- 初始ATEC评分(3岁时)117,目前20分中段
- GFCFSF饮食 - 减少发脾气,消除湿疹
- 镁 - 结束3年便秘困扰
- 线粒体支持
- 鱼肝油 - 开始组词
- 神经反馈治疗 - 出现观察性语言、减少感觉统合问题、更好的眼神接触、减少攻击行为
- ACC治疗(175轮) - 对话式语言、专注力、消除感觉统合问题、改善睡眠
- 肾上腺支持和酵母菌方案(与ACC结合)
- 骆驼奶 - 认知提升,终于开始增重
- 向日葵卵磷脂
- 莱姆病方案(18个月草药治疗)
- PANDAS方案 - 草药和抗生素治疗
Kelly Steffens,女儿Marley,15岁,自闭症谱系障碍(ASD)& 脑瘫(CP)
- 离子镁 - 开始听从指令
- P5P - 维生素B6的分解形式 - 按指令指出物体
- Omega 3 - 更好的专注力
- 5MTHF - 独立上楼梯、减少发脾气、停止失神发作(“本垒打”补充剂)
- 高压氧治疗(Hyperbaric Oxygen Therapy) - 语言、社交能力
- 特定碳水化合物饮食(SCD) - 清除酵母菌过度生长,脑雾消失
- 结肠镜检查 - 发现慢性炎症
- 解决慢性便秘 - 行为显著改善
- 内窥镜检查 - 发现嗜酸性食管炎,进一步过敏检测显示鸡蛋和动物过敏
- 将动物移出家门 - 行为改善
- Brain Balance治疗 - 使她完全融入学校主流课程
- r5p(维生素B2) - 帮助耐受辅酶Q10
- α-硫辛酸(ALA) - 更好的执行功能和自我意识,更有活力
- 脊髓穿刺检测脑叶酸缺乏 - 避免青春期癫痫发作(至今)
- 高剂量5MTHF - 更好的专注力、更低焦虑
- 左卡尼汀(LevoCarnitine) - 更好的精力、专注力
- 顺势疗法 - 治愈艰难梭菌感染(C Diff)
- 锯棕榈(Saw Palmetto) - 减少多动、更顺从、更快乐
Ingrid Hartmann,儿子8岁,自闭症谱系障碍(ASD)、PANS(合并莱姆病)
- 无麸质无酪蛋白饮食(GFCF)
- Enhansa - 开始沟通,仍无语言+少量眼神接触
- 镁 - 声音敏感问题解决,改善听觉处理问题
- DMG - 声音和沟通增加
- B12注射 - 改善睡眠及许多其他问题(甲钴胺MB12和羟基钴胺Hydroxy B12)
- Complete Omega/ ProEfa - 3岁时说出第一句话, apraxia(语言运用障碍)开始缓解
- AC螯合疗法 - 迅速恢复眼神接触,自闭症特征逐渐减少
- 乙酰左旋肉碱(Acetyl l-carnitine) - 剩余的语言运用障碍和发音问题解决
- 微化维生素A(Mycellized vitamin A) - 消除侧视
- 减少硫醇(Reducing thiols) - 情绪改善、更清醒
- 抗微生物剂:Enhansa、橄榄叶提取物(OLE)、葡萄柚籽提取物(GSE)、黑 cumin 油、牛至油(涂抹脚底)
- 生酮饮食 - 比GFCF饮食产生更多改善
- Yasko方案,特别是CBS和SHMT RNA(但仅使用ACC协议进行金属排毒)
- 锌肌肽(Zinc Carnosine)+ 滑榆树皮(Slippery Elm)(肠道修复)
- 向日葵卵磷脂
- GABA + 茶氨酸 - 减少兴奋性毒性问题
- PQQ + 狮鬃菇(Lion's Mane) - 改善痉挛和认知
- 整骨疗法(Etiopath) - 听觉处理问题、频繁排尿和其他自主神经功能障碍症状、痉挛
- 其他常用补充剂:肌肽、消化酶(Trienza或Enzymedica)、维生素C、线粒体鸡尾酒(不含ALA)、干燥肝脏提取物、珊瑚钙、吡啶甲酸锌、脱水铁线草水提取物(肝脏支持)、琉璃苣油(GLA)、ACE、锂、硼、铬、钼、碘、二氧化硅、NeuroProtek、Biogaia、无D-乳酸益生菌(Custom Probiotics D-Lactate Free)、左旋肉碱、顺势疗法
Elizabeth Bernadette,儿子6岁,自闭症谱系障碍(ASD)& PANS
- 饮食 - 更专注,无湿疹
- 维生素D - 更多精力
- 锌 - 饮食更多样化
- 益生菌 - 减少便秘
- 甲钴胺(MB12)注射 - 改善眼神接触
- 鱼油 - 减少炎症、改善眼神接触
- DMG - 更多 babbling(咿呀学语)
- ACC治疗 - 40轮,轻微改善接受性语言
- 微高压氧治疗(mHBOT) - 改善表达/接受性语言,学会自主排便
- 阿奇霉素/阿昔洛韦(Azithromycin/Acyclovir) - 接受/表达性语言提升(PANS相关),减少强迫症
- 泼尼松冲击治疗(Prednisone bursts) - 减少炎症
- 制霉菌素(Nystatin) - 减少酵母菌
- George's芦荟水 - 肠道蠕动
- 脊椎按摩/颅骶疗法(Chiro/CST) - 更多表达性语言、减少便秘、减少踮脚走路
- 脂质体褪黑素 - 镇静、专注、神经保护
- 螯合剂 - 帮助减少支原体
- Biocidin - 减少酵母菌
Katrina Tusikov,儿子Tiago,11岁,PDD-NOS(未特定的广泛性发育障碍)
- 饮食 - 首先去除敏感食物,然后摄入高营养密度食物
- 维生素/矿物质平衡
- 酵母菌治疗 - OoO(橄榄油+奥勒冈油)、Allimax(大蒜提取物)
- 肾上腺支持 - holy basil(圣罗勒)、南非醉茄(Ashwagandha)、西伯利亚人参混合剂
- 一年Heilkunst顺势疗法
- Andrew Cutler螯合疗法
- 小肠细菌过度生长(SIBO)方案 - Biotics FC-Cidal和Dysbiocide
- 消化酶
- 锯棕榈(Saw Palmetto)
Heather Stiles,儿子6岁,“典型自闭症”,超lexia(超读症),超numeracy(超计算能力)
- 初始ATEC评分(2岁9个月时)50-60分,6岁时1分
- 舌系带和唇系带矫正术(23个月) - 能够发出新声音、更平静、停止食物呛咳
- 甲钴胺(Methyl b-12,2岁) - 单音节词、动物声音、增加恰当玩耍
- 无乳制品饮食(3岁) - 停止撞头、停止眼球转动抽动
- 无麸质饮食(3岁) - 更平静、改善排便、能表达需求
- 锌(3岁半) - 更社交、减少挑食
- 低谷氨酸/酚类饮食(3岁半) - 减少多动、减少旋转行为
- 克拉瑞汀/低组胺饮食(3岁半) - 开始提问,目前每年仅使用2-3次
- 镁油+褪黑素+柠檬香蜂草(4岁) - 改善睡眠
- 苏糖酸镁(Magnesium threonate,4岁) - 更平静、更多语言、出现句子
- 甲基叶酸(Methyl folate,4岁) - 更平静、更多语言
- 低草酸盐饮食(5岁) - 更健康的排便、减少肠道不适
- DMG(5岁) - 减少突然跑开/走失、改善专注力、对话式语言
- 钼(Molybdenum,6岁) - 减少氨中毒、完全对话式语言、行为改善、停止走失
Natasha Lynn,女儿10岁,自闭症谱系障碍(ASD)、线粒体病(Mito)、脆性X相关震颤/共济失调综合征(FRA)、PANS
- 初始ATEC评分(5岁时)128,目前11分
- 饮食(GF/CF/SF) - 语言能力提升
- 制霉菌素(Nystatin) - 扫清学习障碍,早期语言出现,正常睡眠规律
- Biocidin - 降低梭菌水平
- 益生菌(多种) - 杀灭梭菌、减少酵母菌
- 线粒体鸡尾酒 - 改善:表达/接受性语言、大运动技能、语言处理能力、核心力量、减少肌张力低下、能量、减少亚临床癫痫活动迹象
- 消化酶( Serrapeptease/ Candizyme) - 清除酵母菌过度生长
- 饮食(SCD) - 治疗酵母菌过度生长和肠道健康的基础,正常排便
- 镁 - 减少便秘
- 气功按摩 - 结束感觉防御
- 经典顺势疗法 - 结束遗尿症(夜间尿床),部分表达性语言
- 茶氨酸(L-theanine) - 结束严重焦虑
- 乳清酸锂(Lithium Orotate) - 改善情绪
- L-5-MTHF/亚叶酸(Leucovorin) - 正常执行功能技能、社交技能、对话式语言、学业提升
- 槲皮素(Quercetin) - 平息PANS症状、解决鼻部(过敏)症状、减少炎症
- 牛磺酸(Taurine)& 肌肽(Carnosine) - 表达性语言提升
更多清单即将推出,敬请关注!
对我们无效的方法...
以下列出的是导致倒退和/或成本高但无帮助的特定项目(非全部)!
- Rebecca Ferguson:高剂量维生素A方案、伐昔洛韦(Valtrex)、含二巯基丁二酸(DMSA)的ACC治疗、Immunovir、GOleic、神经反馈治疗、同源毒素学(Homotoxicology)、泼尼松龙(Prednisolone)、益生菌、离子清洁(Ioncleanse)
- Melissa Vega:益生菌、初乳
- Verity Daniel:牛磺酸(CBS基因突变 - 牛磺酸水平已高)、含DMSA的ACC治疗、Kirkman的Spectrum Complete(导致面部抽动,停药后消失)、菊粉(Inulin,需数月恢复基线)、蛋氨酸锌(Zinc methionine)、L-鸟氨酸(L-orthinine)、磷脂酰丝氨酸(Phosphatidylserine)
- Natasha Lynn:TMG/DMG、酵母菌草药治疗、无D-乳酸益生菌(导致自我刺激)、Enhansa、斐济水、Get Smart、萝卜硫素(Sulforaphane,便秘)、鱼油/SPEAK(语言或炎症无变化)、加兰他敏(Galantamine,抽动、能量崩溃)
专业术语说明:
- ASD:自闭症谱系障碍(Autism Spectrum Disorder)
- PANS/PANDAS:儿童自身免疫性神经精神障碍(Pediatric Acute-Onset Neuropsychiatric Syndrome / Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)
- mHBOT:微高压氧治疗(micro-Hyperbaric Oxygen Therapy)
- ACC:Andrew Cutler螯合疗法(一种重金属排毒方案)
- SCD:特定碳水化合物饮食(Specific Carbohydrate Diet)
- GFCF/GFCFSF:无麸质无酪蛋白/无麸质无酪蛋白无大豆饮食
- TACA:自闭症社区治疗与交流协会(Treatment and Communication in Autism Society,已更名为Autism Society)
- ATEC:自闭症治疗评价量表(Autism Treatment Evaluation Checklist)
- CBS/SHMT:同型半胱氨酸代谢相关基因(胱硫醚β合成酶/丝氨酸羟甲基转移酶)
- DMG:二甲基甘氨酸(Dimethylglycine)
- BH4:四氢生物蝶呤(Tetrahydrobiopterin)
- OLE/GSE:橄榄叶提取物/葡萄柚籽提取物
- NOOTROPICS:益智药(改善认知功能的物质)
- MITO:线粒体病(Mitochondrial Disorder)
- FRA:脆性X相关震颤/共济失调综合征(Fragile X-Associated Tremor/Ataxia Syndrome)
- SIBO:小肠细菌过度生长(Small Intestinal Bacterial Overgrowth)
- HEILKUNST:一种顺势疗法体系
- CHIRO/CST:脊椎按摩疗法/颅骶疗法(Chiropractic/Craniosacral Therapy)
- LIPOSOMAL:脂质体包裹技术(提高吸收效率的剂型)
**What Worked for Our Kids - Admin Lists!** New File**
Rebecca Ferguson·Sunday, March 18, 2018·
This page is a collection of lists from group moderators about what treatments have helped our kids, in chronological order.
It’s intent is to show that there are differences in what has worked for each child, but also patterns and similarities that may be helpful for parents to focus on.
Each parent should work with a doctor to tailor treatments to their child and lab testing can often help guide the choices. Please do not take this as our advice for what you should try for your child, but rather a starting point for ideas if you need some!
Toward the bottom of this page you will also find a separate section listing things we tried that did not work for our children.
Note: Some supplements and treatments listed have links to more information - either to personal blog posts or another source of info. You can also search our group for many past posts on any of the items listed.
Rebecca Ferguson, Daughter age 13, ASD & PANS (also Lyme)
Behavior balance DMG - improved tolerance, language, transitions, engagement
Digestive Enzymes - subtle changes indicated we needed to change diet
Diet changes- GF then, CF & SF - Excellent TACA page here
Vitamin and Mineral supplements
Treating yeast naturally - calmer, more present, less stimmy
Mb-12 injections - language burst
Cod Liver Oil - increased tolerance and mood
Specific carbohydrate diet - more focus and attention, far better than GFCFSF
Diflucan - language burst, more present, less brain fog
Flagyl - less OCD
Melatonin - dramatically helped sleep
Low dose Naltrexone - initially helped but we stopped - she couldn’t sleep
mHBOT - lessening of all autism symptoms, calmer, happier, more tolerant, better language, less tantrums / anxiety - increased yeast
Low oxalate diet (in addition to SCD) - eliminated oxalates in urine and inflammation
Andy cutler chelation - 85 rounds - more tolerance, improved awareness, focus, social engagement, significant language gains
Adrenal cortex extract - stopped meltdowns
Homeopathy - results didn’t last, but we are trying again and seeing nice things!
Camel milk - more engagement, attention and language
Treating Parasites - reduced teeth grinding, pacing, scripting, verbal stims & fogginess
L carnosine & Seriphos - improved calmness and agility
Herbs for PANS - Goldenseal and others - successfully replaced antibiotics
Nootropics: Get Smart - Dramatic cognitive gains
Thyroid treatments - more present, less need for adrenal support
Removing probiotics - stopped ocd / tics
Neuroprotek - decrease in OCD, calmer and happier
Propranolol - helped with anxiety, but she was more present without it
Galantamine - less OCD, more focus, lifted brain fog
Huperzine A - less OCD, more focus
Lithium Orotate - slightly improved disposition
PQQ - excellent mito support
BH4 & binders - treated ammonia - reduced laughing that presented like yeast
Treating Lyme with antibiotics and herbs - see bottom of [this post]
Detox Support with various supplements (see link for list) - necessary for Lyme treatment
Anti-androgens - calmer, eliminated short rage episodes, more language, more engaged
CBD Oil - dramatically decreased anxiety & inflammation and Terpenes for sleep also helped significantly
Treating mood, anxiety and mild depression naturally
Melissa Vega, son Aidan, age 12, ASD, PANDAS (also Lyme)
Starting ATEC age 3 was 117, currently in mid 20s
GFCFSF diet- decreased tantrums, eliminated eczema
Magnesium- ended 3 year battle with constipation
Mito support
Cod liver oil- started putting words together
Neurofeedback- observational speech, less sensory issues, better eye contact, less aggression
ACC- (175 rounds) conversational speech, focus, eliminated sensory issues, better sleep
Adrenal support and yeast protocol along with ACC
Camel milk- cognitive gains, finally started gaining weight
Sunflower lecithin
Lyme protocol (18 months) of herbals
PANDAS protocol- treated with herbals and antibiotics
Kelly Steffens, daughter Marley, age 15, ASD & CP
ionic magnesium- began to follow commands
P5P – broken down form of B6 – pointed to objects on command
Omega 3 – better focus
5MTHF – walked up stairs independently, less tantrums, stopped absence seizures (Homerun supplement)
Hyperbaric Oxygen therapy – speech, socialization
Specific Carbohydrate Diet – cleared out yeast overgrowth and fog lifted
Colonscopy – revealed chronic inflammation
Addressing Chronic constipation – Behavior dramatically improved
Endoscopy - revealed Eosinophilic Esophaghitis and further allergy testing revealed an
egg & animal allergy
Removing the animal from the house – better behavior
Brain Balance – got her fully mainstreamed at school
r5p (B2) – helped her tolerate CoQ10
ALA – Better executive functioning and self-awareness, better energy
Spinal tap to find Cerebral Folate Deficiency - avoided seizures at puberty (so far)
High dose 5MTHF – better focus and attention, lower anxiety
LevoCarnitine – better energy, focus and attention
Homeopathy – Cured C Diff
Saw Palmetto – Less bounciness, more compliant, happier
Ingrid Hartmann, son, age 8, ASD, PANS (also Lyme)
GFCF diet
Enhansa - entered into communication, still non-verbal + little eye contact
Magnesium - sound sensitivity resolved, improvement in auditory processing issues
DMG - increase in sounds + communication
B12 injections - improved sleep + many other issues. Both MB12 and Hydroxy B12.
Complete Omega/ ProEfa - first words at 3 years old, apraxia began to resolve
AC Chelation - eye-contact rapidly regained, autism traits gradually reduced
Acetyl l-carnitine - remaining apraxia and pronunciation issues resolved
Mycellized vitamin A - eliminated sideways glancing
Reducing thiols - mood improvement, more aware
Anti-microbials: Enhansa, OLE, GSE, black cumin oil, Oreganol (soles of feet).
Keto diet - produced more gains compared to GFCF
Yasko protocol, in particular CBS and SHMT RNA (but only ACC protocol for metal detox).
Zinc Carnosine + Slippery Elm (gut lining)
Sunflower lecithin
GABA + theanine - reduced excitotoxicity issues
PQQ and Lion's Mane - spasms and cognition
Osteopath (Etiopath) - audio processing issues, frequent urination and other symptoms of dysautonomia, spasms
Other supplements often used - Carnosine, enzymes (Trienza or Enzymedica), vitamin C, mito cocktail (without ALA), dessicated liver, coral calcium, zinc picolinate, desmodium adscendens aqueous extract (liver support), borage oil (GLA), ACE, lithium, boron, chrome, molybdenum, iodine, silica, NeuroProtek, Biogaia, Custom Probiotics D-Lactate Free, L-carnitine, homeopathy
Elizabeth Bernadette, Son, age 6, ASD & PANS
Diet- better focus, no ezcema
Vitamin D- more energy
Zinc- ate more variety
Probiotics- less constipation
MB12 shots- improved eye contact
Fish oil- less inflammation, eye contact
DMG- more babbling
ACC- 40 rounds, slightly improved receptive speech
mHBOT- improved expressive/receptive speech, potty trained
Azithromycin/Acyclovir- gains in receptive/expressive speech (PANS) less OCD
Prednisone bursts- decreased inflammation
Nystatin- reduced yeast
George's aloe Vera water- gut motility
Chiro/CST- more expressive speech, less constipation, less toe walking
Liposomal melatonin- calm, focus, neuroprotective
Binders- help reduce Mycoplasma
Biocidin- reduce yeast
Katrina Tusikov, Tiago age 11 PDD-NOS
Diet - removed sensitivities first then fed food dense in nutrients
Vitamin / mineral balancing
Yeast -OoO, Allimax
Adrenal support - Holy Basil, Ashwagandha, and Siberian Ginseng blends
One year of Heilkunst Homeopathy
Andrew Cutler Chelation
SIBO protocol- Biotics FC- Cidal and Dysbiocide
Enzymes
Saw Palmetto
Heather Stiles, son, age 6, "Classic Autism", hyperlexia, hypernumeracy
ATEC first done age 2.75y 50-60 range, ATEC at age 6 is 1
Tongue & lip tie revision @23m - able to make new sounds, calmer, stopped choking on food
Methyl b-12 @2y - One syllable words, animal sounds, increased appropriate play
Dairy free @3y - stopped headbanging, stopped eye rolling tic
Gluten free @3y - calmer, improved BM, can communicate wants
Zinc @3.5y - more social, less picky eating
Low glutamate, phenol diet @3.5y - less hyperactive, less spinning
Claritin/low histamine diet @3.5 - started asking questions, now only used 2/3 times/year
Magnesium oil, melatonin, lemon balm @4y - improved sleep
Magnesium threonate @4- calmer, more speech, some sentences
Methyl folate @4 - calmer, more speech
Low oxalates diet @5y - healthier BM, less intestinal distres
DMG @5 - reduced bolting/eloping, improved concentration, conversational speech
Molybdenum @6y - reduced ammonia, fully conversational, improved behavior, stopped eloping
Natasha Lynn, daughter, age 10, ASD, Mito, FRA, PANS
Starting ATEC age 5 was 128 Currently 11
Diet (GF/CF/SF)- language gains
Nystatin- Cleared the air so she could learn, some early language, normal sleep schedule
Biocidin- Reduced clostridia levels
Probiotics- (Various), killed clostridia, reduced yeast
Mito Cocktail – Gains: Expressive and Receptive language, gross motor skills, language processing, core strength, reduced low tone, energy, reduced signs of subclinical seizure activity
Enzymes- (Serrapeptease/ Candizyme) cleared yeast overgrowth
Diet (SCD)- Foundation for treating yeast overgrowth and gut health, normal bowel movements
Magnesium- reduced constipation
Qigong Massage- Ended sensory defensiveness
Classical Homeopathy- Ended enuresis (night time wetting), some expressive language
L-theanine- ended severe anxiety
Lithium Orotate- Improved mood
L-5-mthf/ Leucovorin- normal executive functioning skills, social skills, conversational language, academic gains
Quercetin- calmed PANS symptoms, nasal (allergy) symptoms resolved, reduced inflammation
Taurine & Carnosine- expressive language gains
More lists to come, Stay tuned!
What didn’t work for us...
This list is select items that caused regressions and/or were costly and didn’t help, not all inclusive!
Rebecca Ferguson - High dose vitamin A protocol, Valtrex, ACC with DMSA, Immunovir, GOleic, Neurofeedback, Homotoxicology, Prednisolone, Probiotics, Ioncleanse
Melissa Vega- probiotics, colostrum
Verity Daniel - Taurine (CBS mutation - taurine level already high), ACC with DMSA, Spectrum Complete by Kirkman (caused facial tics, which disappeared when supplement withdrawn), Inulin (many months to get back to baseline), Zinc methionine, L-orthinine, Phosphatidylserine
Natasha Lynn - TMG/DMG, Herbals for yeast, D-lactate Free probiotic (stimming), Enhansa, Fiji water, Get Smart, Sulforaphane (constipation), Fish oil/SPEAK (no changes in speech or inflammation), galantamine (tics, energy crash)
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